By admin Media Health Group is a firm believer that attention should also be given to rare conditions. We aim to change intricate medical issues into stories that are impactful, also giving insight, compassion and support to all individuals
Swyer Syndrome can’t just be subjected to a medical term, it is a very intricate and vastly intimate experience. In the medical sense, it is a sex development disorder also known as DSD that happens when a person has the male chromosomes of XY but presents as a female because of gonads that aren’t functioning. This implies that an individual with the Swyer Syndrome might look female outwardly but doesn’t go through puberty in a natural way or even menstruation without undergoing treatment for it.
However, there is so much more to this syndrome which is inclusive of fertility, confidence, identity and general physical image. Media Health Group will help you discover 6 amazing facts that will enlighten you on what it entails to live with Swyer Syndrome and how it is important to be loaded with that knowledge.
A lot of people living with Swyer Syndrome often find out about this syndrome in their teen stage especially after there is no start of puberty or menstruation. It can be a bit confusing and self reflecting for a lot of people to find out that they have the XY chromosomes.
But to enlighten you, your chromosomes don’t define you. There are a lot more faces to gender identity and it is based mostly on hot feelings, way of life and means of self expression. A lot of people living with Swyer Syndrome have been known to identify as females and are living great lives as women.
There have been a lot of cases where Swyer Syndrome was diagnosed in the late stages which is usually between teenage years to even twenties. Because of how long it has taken, there can be a risk of heart issues, bone issues and even the risk of cancer if there is a removal of gonads.
If this syndrome undergoes an early diagnosis, there will be more option to:
- Avoid further complications
- Begin the process of therapy for hormone replacement at the appropriate time.
- Get in touch with planning for reproduction on time.
There is a big move for doctors training on seeing the signs in time and that entails good practices and outcomes for affected people.
If you are looking to manage Swyer Syndrome, the main approach to use are Estrogen and progesterone replacement. Asides from shielding health factors like the heart, bones and so much more, they also aid in the development of breasts and create faux menstrual cycles. However it is as emotional as it is physical for a lot of people.
If you are hoping to feel normal and be more in tune with your body, then starting HRT is a big step in that direction. It is also a means to heal from the uncertainty , discomfort and confusion.
It can be so sad and depressing not to have a child through natural means. However, having Swyer Syndrome doesn’t affect the possibility of being a mother.
Due to the fact that a lot of people are born with a uterus, it is possible to have a child through IVF and donor egg and there are a lot of cases of women with Swyer Syndrome successfully having children.
As long as you get to have options, it doesn’t matter if it is your biological children, adopted children or no children at all. Anything you choose to do should be encouraged, supported and not stigmatized.
It can be such a distressing feeling to be alone especially when you have a rare condition that isn’t found in people around you. But you don’t have to feel that way anymore because of social media and advocacy communities. It is now easy to relate to others like you and get the best support.
There are some communities like:
- InterACT
- Accord Alliance
- Reddit or Private Facebook Groups
These communities give room for people with Swyer Syndrome to relate, be inquisitive and be heard.
When you have Swyer Syndrome, you should see it as a unique way of going through your identity, relationships, puberty and even fertility in a different way and it requires a lot of confidence.
There are truly a lot of obstacles to overcome by people with Swyer Syndrome but there is also a display of being self aware, resilient and emotionally intelligent.
Yes. If they use hormone therapy and regular care, a full and healthy life that is inclusive of relationships, careers and even pregnancy from IVF is possible.
In order to avoid cancer, it is advised to take out the gonads that are not functioning. This process is normally carried out after the patient has been diagnosed and it is a good way to prevent issues.
No. A lot of individuals living with Swyer Syndrome are seen as female. It is only required to do gender transition if your identity feels misplaced from the female identity.
The most common factor is because of a mutation of the gene that changes how the body views the Y chromosome, especially the SRY gene. Because of this mutation, development of the male sexual organs does not occur.
Yes. You don’t need menstruation to prove your femininity. You can bring about periods by doing hormone therapy, but biology solely doesn’t define your identity, it is dependent on your way of life and feelings.
Swyer Syndrome might have an impact on your body and mind but it isn’t stopping how you live. There are a lot of questions and a lot of sadness attached to it but it also invites empowerment in the medical field, knowledge and connection.
Media Health Group are strong believers that there shouldn’t be any segregation because of rare conditions. No one is broken.